My meeting with Caroline Lucas MP by Joseph Tanner

On Friday 23rd February, I had the pleasure of meeting Brighton Pavilion MP, Caroline Lucas. The meeting was set up by Caroline’s office because she was unable to attend Cardiac Risk in the Young’s Parliamentary Reception in November and she wanted to learn more about the work CRY do. The previous year, Caroline signed a C-R-Y pledge to support a National Strategy

My Heart Story By Rich Morris

Hi Everyone, It has taken me a long time to find somewhere to share stories, thoughts and experiences with others in a similar position. And it feels good! I have been active throughout my life, playing every sport accessible to me. My first experience of any cardiac issues was at around age 18, I think I had over indulged on

myheart enewsletter-January 2018. What’s new for 2018?

Thank you to all members who helped raise awareness of Cardiac Risk in the Young (CRY) and myheart in 2017. Last year 73 new members joined us. The hard copy newsletter featuring last year’s activities will be mailed to you shortly. Please find in this newsletter information on: New private Facebook group for myheart Heart Month – February myheart cardiologist to film new

Raising Awareness and Funds during the CRY RA Week by Stephanie Young

During the week of 20th – 24th November, Forest Hall Primary School held a whole fundraising week for CRY. We are a small school, with less than 200 children, and everyone got involved! I am a teacher there and the children loved the whole week! We started our week with an assembly about CRY and why we were raising the

Brugada and me by Laurie Ketley

The 9th December 2016 isn’t a key date for me. On that day, I was with my Mum, Dad and younger Sister, who were finishing up from undergoing their Flecanide Challenges…which all fortunately came back clear, which was a huge relief. At 18:30 I received a phone call from my Cardiologist, who went on to tell me I had Brugada

CRY Parliamentary Reception 2017

The CRY Parliamentary Reception 2017 at the House of Commons was attended by 6 myheart members – including three myheart Representatives – on November 22nd. Tim Butt, Jessica Maranzano, Zenia Selby, Joseph Tanner and Sinead Watts travelled to Westminster for the prestigious annual event at which CRY Patrons, Representatives, Research Fellows and MPs gather to raise awareness of inherited heart

New Vlog by Mike Sheldrick

Hey guys, just weeks before I turned 35 I was diagnosed with WPW. I’m starting a YouTube channel and made a video about my experience thus far. I wanted to thank CRY for their early encouragement and support. Check it out here, https://youtu.be/5MxGjATFr18

I thought I had a flu but then I suffered a cardiac arrest! by Jake Fordham

On Tuesday the 21st of February I was sent home from work a little early as I was feeling unwell. My colleague had only recently returned to work after having the flu so I assumed I was coming down with something similar. My manager asked me to call in the next day if I was still feeling unwell but hoped

I suffered a cardiac arrest at my sister’s wedding!! by Carly Williams

I have no diagnosis for my SCA yet. It happened in July this year and I have had all the tests but the cause is still unknown, I have MVP but they have said that is unrelated. I am 34 And was at my sister’s wedding as maid of honour. As I walked down the aisle, I told my friend I

I was diagnosed with LQT after 20 years..by Rebecca Scheffe

My name is Becky and I was diagnosed with Long QT Syndrome in 2010 when I was 37 years old. At the age of 17, I had a terrible experience as I went to bed one evening and had my first seizure, it was so terrifying I thought I was dying. The doctor was called but he suggested it was