National myheart meeting-20th May, 2023
A myheart members’ meeting was held at Friends House, in London on Saturday 20th May, 2023. The meeting involved a Q and A session with cardiologist, Dr Raghav Bhatia. In this session, members were free to ask any questions they had about their condition, the exercise/s they can do or any other cardiac concerns they have. If you have questions
Update from Credible Meds
We have received the following from CredibleMeds. Subscribe to their newsletter if you would like to receive regular updates from them too. February 21, 2023 Re: Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS Dear CredibleMeds Registrants: AZCERT’s Scientific Review Committee has found substantial evidence that Macimorelin (used for diagnosis of growth hormone deficiency), Dexmedetomidine (sedative), Pralsetinib (Thyroid cancer), Adagrasib (NSC Lung cancer) and Tebentafusp (melanoma of
My WPW story by Kathleen Dymond
My journey starts in my early teens when I became aware of my heart pounding in my chest, my heart racing, my throat constricting like hands that had wrapped themselves like a tight vine around my neck. I would feel faint like I would collapse and unable to catch my breath. It felt like I was going to suddenly die.
myheart enewsletter Aug-Oct 2022
Dear myheart members Please find in this newsletter information on: CRY Raising Awareness Week 2022Submitting stories for the myheart hard copy newsletterHeart of West London Partnership Read the full enews here. Subscribe to myheart enews here to receive latest myheart and CRY updates .
Online myheart meeting with Dr Sabiha Gati-Saturday, 1st October, 2022
A myheart members’ video meeting was held on Saturday, 1st October, 2022. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how long ago you were diagnosed or whether you are undergoing
myheart enewsletter Jun-Jul 2022
Dear myheart members Please find in this newsletter information on: CRY Heart of London Bridges Walk 2022 and new Raising Awareness page Conversation between cardiac arrest survivors and myheart members, Meg Fozzard and Tim Buttmyheart annual newsletterPrivate myheart Facebook group Read the full enews here. Subscribe to myheart enews here to receive latest myheart and CRY updates .
myheart hard copy newsletter-2021
Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
The shock of cardiac arrest when you’re young and fit
When your heart suddenly stops pumping blood around your body, the consequences can be life-changing, if not fatal. It’s somehow especially shocking when the cardiac arrest happens to someone who is young and fit – like the Danish midfielder Christian Eriksen. Here myheart member, Meg Fozzard, draws on her own experiences, and those of a fellow cardiac-arrest survivor, Tim Butt,
myheart enewsletter Apr-May 2022
Dear myheart members Please find in this newsletter information on: CRY Heart of London Bridges Walk 2022-Registration OpenInterview with CRY Research Fellow, Dr Raghav BhatiaCRY International Medical ConferenceSubscribing to myheart’s postal mailing Read the full enews here. Subscribe to myheart enews here to receive latest myheart and CRY updates .
I was told, “I might not make to 35!” by Tom Roberts
After years of struggling with heart grumbles, pains and palpitations, i was repeatedly told (by different doctors) that it would just be stress, anxiety and depression. Different medications did nothing to stop the aforementioned issues I experienced. The symptoms also got so much worse after my Mum passed away in 2018 but this was again put down to stress, anxiety
