My journey with ARVC by Gavin Boyce
My journey with ARVC started on January 16th 2012 when I woke up in hospital to see a nurse looking back at me trying to offer me some reassuring words. She said I was in hospital and that there was a lot to explain, she was going to call my wife to let her know that I had come around.
Living with a Fontan Circulation – Tricuspid Atresia by Jara Weinkauf
Even though there was no history of heart disease in my family and my parents led a very healthy lifestyle, I was born with tricuspid atresia in 1986 in Berlin/Germany. Doctors noticed that my skin was very blue and something had to be wrong with me. After a palliative operation as a baby, I had a Fontan surgery when I
Super Ventricular Tachycardia (SVT) by Samantha McLaren
I have been suffering from SVT attacks since March 2010 when I suddenly collapsed at work. I was taken to A&E for tests, my heart rate was very high reaching over 200BPM, I remember being very scared as I was never in hospital and was always fit and healthy. They gave me a 6mg jag of adenosine and it slowed
Paul Cowling-DCM
Before I share my experiences and try to give some idea of how I try to cope with what has happened, one thing should be made very clear: having a heart condition sucks. I mean, it really sucks. It’s a massive thing to have to comprehend; that the core element of us, the heart, doesn’t work as it should. Or
Zenia Selby- earlier diagnosed with WPW
I was out on a 5k run when suddenly my heart started beating several times faster than it should have been. I stopped, sat down, breathed deeply, but nothing would stop it. I was in the middle of a wood when it happened, exactly halfway through the run and so about 2.5k away from home. After about 10 minutes of resting,
Paula Beck
Paula Beck (Simmonds) wrote her story to be included in the myheart booklet which was launched in November, 2013. I was diagnosed with Brugada syndrome on 8th August 2011 at St George’s Hospital. I am a mum of two, one of four siblings and was only 30 when diagnosed. Our family underwent tests after my brother (Craig) suddenly died in
Alessandro Miccoli
Alessandro Miccoli wrote his story to be included in the myheart booklet which was launched in November, 2013. It wasn’t until the end of 2012 that a journalist first introduced me to the charity CRY. I quickly became aware of the amazing work they do in helping promote awareness of heart conditions in the young. Since my early teens, heart
Emma Jackson
Emma Jackson wrote her story to be included in the myheart booklet which was launched in November, 2013. I never liked sports when I was younger and was never any good. I remember having strange missed beats, tiredness and slight dizziness but thought this was normal. It was pure chance that a doctor noticed a heart ‘murmur’ prior to knee
Sian Donnelly
Sian Donnelly wrote her story to be included in the myheart booklet which was launched in November, 2013. Whilst on a family holiday in 2004, my brother Adam died suddenly whilst playing volleyball at our hotel. After two post-mortems we were told that he had died from SADS (sudden adult death syndrome). At the time, we were completely unaware of any
Chris Currie
Chris Currie wrote his story to be included in the myheart booklet which was launched in November, 2013. I was 24 and having the time of my life travelling around the world with two friends. We had made it to Bangkok when we found ourselves in a bar and I literally keeled over. I am only here today because I
