Antony Eames
Tony Eames wrote his story to be included in the myheart booklet which was launched in November, 2013. I had my first episode of fainting at 4 years old. From then on I passed out regularly. Sometimes I passed out several times a day. During this time I was not allowed to do any school […]
Bradley Farrow
Living with Brugada I did not realise that anything was wrong with me. Occasionally I would notice that my heart seemed to be going fast like it does when you’ve just been running, but I would not have been running. I didn’t think anything of it as it didn’t bother me and at 15 why […]
Catherine McGough
Living with endocardial fibroelastosis My name is Catherine and I thought I would tell my story so that maybe it will give others a bit of hope. I am now 24 yrs old. When I was 7 weeks old back in December 1979, I was rushed into the Leeds General Infirmary having heart failure. After […]
Louise Dee
Living with long QT syndrome Hi, my name is Louise. It all started in 1990 when I was 8 yrs old. I woke up hearing an alarm clock and realised it was my mother’s for work, so I got out of bed and went to turn the alarm off. When I went into her bedroom […]
Rob Jackson
Living with arrhythmogenic right ventricular cardiomyopathy (ARVC) I am a 31 year old Sergeant in the Army Air Corps and until recently was a Lynx Helicopter pilot and aircraft commander operating in Northern Ireland. I joined the Army at 18 and have spent the past 12 years living an active, healthy lifestyle as a soldier. […]
Barry Hooton
Living with an implantable cardioverter defibrillator (ICD) and an undiagnosed condition This story comes from two people – me, Anna (aged 17), a.k.a. “the girlfriend” and Barry (aged 23), a.k.a. “the mystery.” Its a long story, but perhaps may give hope to those who are also undiagnosed just like Barry. This story begins on June […]
Ian Tunnell
Living with Wolff Parkinson White syndrome I would like to recount the circumstances surrounding my son’s experience of Wolff Parkinson White syndrome (WPW) in the hope that other young people, particularly students, will take heed and (a) register with a GP, and (b) go to see them when they’re not well. We had taken Ian […]
Andy Perry
Living with hypertrophic cardiomyopathy My name is Andy. I’m now 38 and at the tender age of 7 after dental treatment, I was ill and taken to the local hospital. After several tests they diagnosed me with a heart murmur. Several years later, attending senior school aged 11, I was taken ill doing sports. My […]
Debra Whiting
Living with right ventricle outflow tract tachycardia (RVOT-T) I was always really sporty when I was younger. I used to be in the netball team at school and represented my county at swimming and horse riding. I did occasionally used to get a flutter in my heart after I had really exerted myself but I […]
Paul Cooper
Living with atrial fibrillation My story began 19 years ago – I am 39 now. I was out with some mates one night, when I felt a funny ‘butterfly’ feeling in my chest – it felt like my heart was racing. That night I went to the hospital with my mate and they did an ECG. My heart […]