Online myheart meeting with Dr Sabiha Gati-Saturday, 4th November, 2023
A myheart members’ video meeting was held on Saturday, 4th November, 2023. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how long ago you were diagnosed […]
Online myheart meeting with Dr Gherardo Finocchiaro-Thursday, 17th March, 2022
A myheart members’ video meeting was held on Thursday, 17th March, 2022. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how long ago you were diagnosed […]
CRY’s myheart representative Rebekah Goddard’s story
It’s been 18 years since I was diagnosed with long QT syndrome and had my very first permanent pacemaker implanted; and 25 years since my father found me unresponsive on the bathroom floor, before resuscitating me – I later found out that 95% of females who suffer their first major ‘event’ do not survive. My […]
Do the CRY Cardiologists and research team see many people with Brugada syndrome and how many need not have an ICD implanted ?
CRY’s myheart cardiologist, Dr Michael Papadakis, answers this question in the video below.
Joe Street and Evan Phillips’ Swansea to London Run for friend and myheart member, Tim Butt
After a close friend of ours, Tim Butt, suffered a near-fatal cardiac arrest we decided it’d be a good idea to go for a run. Setting off from the Liberty Stadium in Swansea, we spent two weeks averaging fifteen miles per day across South Wales and through England all the way to London before then […]