Online myheart meeting with Dr Gherardo Finocchiaro-Thursday, 17th March, 2022

A myheart members’ video meeting was held on Thursday, 17th March, 2022.  Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful.  It does not matter how long ago you were diagnosed […]

CRY’s myheart representative Rebekah Goddard’s story

It’s been 18 years since I was diagnosed with long QT syndrome and had my very first permanent pacemaker implanted; and 25 years since my father found me unresponsive on the bathroom floor, before resuscitating me – I later found out that 95% of females who suffer their first major ‘event’ do not survive. My […]