My condition made me realise how precious life is!

June will mark 4 years since I first discovered something wasn’t right. I was playing pool at the time in a competition match for prize money. There was a lot of pressure and my body could feel it. I was winning 1-0 and all of a sudden I started to go dizzy so I decided […]

Brugada Syndrome Diaries

When thinking about fundraising for a charity, CRY was an obvious choice for me as they’ve done so much for my family and I when we were younger. When I was just six years old and my Brother hadn’t even turned two yet we lost our Dad, he was just 34 years old himself. This […]

My Heart Story By Rich Morris

Hi Everyone, It has taken me a long time to find somewhere to share stories, thoughts and experiences with others in a similar position. And it feels good! I have been active throughout my life, playing every sport accessible to me. My first experience of any cardiac issues was at around age 18, I think […]

Brugada and me by Laurie Ketley

The 9th December 2016 isn’t a key date for me. On that day, I was with my Mum, Dad and younger Sister, who were finishing up from undergoing their Flecanide Challenges…which all fortunately came back clear, which was a huge relief. At 18:30 I received a phone call from my Cardiologist, who went on to […]

I was diagnosed with LQT after 20 years..by Rebecca Scheffe

My name is Becky and I was diagnosed with Long QT Syndrome in 2010 when I was 37 years old. At the age of 17, I had a terrible experience as I went to bed one evening and had my first seizure, it was so terrifying I thought I was dying. The doctor was called […]

Jessica Goddard

Living with long QT syndrome Jessica Jane Goddard was born on the 27th July 2007. She was 3 years old when in May 2010 we received a phone call that would change her life forever… My name is Rebekah Goddard and I am Jessica’s mother. I was diagnosed with long QT syndrome in July 2001 at […]

Antony Eames

Tony Eames wrote his story to be included in the myheart booklet which was launched in November, 2013. I had my first episode of fainting at 4 years old. From then on I passed out regularly. Sometimes I passed out several times a day. During this time I was not allowed to do any school […]