myheart Members Stories
Conditions
Ben’s big daft run for Cardiac Risk in the Young
Last year (2024) I was diagnosed with a heart arrythmia that required two procedures to fix over the course of about 10 months. Prior to this I was fit and
The rhythm of her heart – raising money in aid of CRY
I chose the title ‘The Rhythm of her Heart’ because that was the first song I wrote when I was diagnosed with my heart condition, Long QT Syndrome, at 16
624 Reasons Why by Joe McEwan
My name is Joe, and I suppose you could say I’m your fairly average 23-year-old man. I graduated from university with a law degree in 2022, have played sport pretty
Life with LQTS and LVNC by Abi Edwards
October 2018, aged 14 and asymptomatic- I was taken to a CRY screening as a precautionary check by my mum at St. George’s Hospital. Little did I know that that
Every Cloud by Thomas Flanighan
After serving nine years in the military as a Royal Marines Commando, I needed a new challenge and started striving towards a career as a Commercial Pilot. The flying medical
We thought something was wrong with ECG leads or monitor but… Blog by Jess-Lee Welch
I was in my final year of uni studying Sport and Exercise Science and we were in the lab doing ECGs on one another. When my lecturer (Dr David Oxborough)
I am forever grateful to the GP who saved my life! Blog by Roxy Ball
From being little I always remember I found running and PE hard. I was good at rounders because I could hit the ball and then race around the posts! But
My story of being diagnosed with LQT in the midst of a pandemic by Ruth Williams
In April of this year, I was diagnosed with Long QT Syndrome (LQTS). In the midst of a pandemic, this was the most unwelcome conclusion to my ongoing investigations! In
A Reflection on My Experience Living with a Heart Condition by Daniel Redfearn
I had no idea at the end of the summer holidays in 2011 that the following months would be a defining period of my life. I was thirteen years old
My story so far – Left Ventricular Non-Compaction Cardiomyopathy
Hello. My name is Phoebe and I’m 22 years old. When I was three years old, I was admitted to Great Ormond Street Hospital to have open heart surgery to
Comparing 2008 to now
Being in lockdown, being in isolation it’s made me re-experience a life I had before and compare the feelings I have now, to that I had back then. We all
Brugada and Self-Isolation
Monday 16th March I celebrated my 12th re-birthday, re-birthday is a term that all cardiac arrest survivors use to celebrate surviving a cardiac arrest. I didn’t really celebrate it this
My heart stopped with no warning at all! by Jade Hobman
Last year, on the 28th of August, it was a normal day for me and I was skating down the road like I do everyday as I skateboard everywhere. Around
My heart condition’s 25th anniversary by Kerry Shephard
Today (03/02/2020) marks 25 years since my heart went crazy and hit 268 beats per minute while I was brushing my hair and getting ready for college. 25 years since
My allergic reaction saved my life..
I have always fainted for as long as I can remember, through assembly at school or if I stood up for long periods of time. My parents kept taking me
I never really thought much about having a heart condition until I had my son! by Jodie Pearson
My Long QT story – by Jodie Pearson, age 36 I was diagnosed with Long QT1 in 2010 when I was 27 years old. A close relative had been having
If only Hollie was screened at an early age!
I would like to share our story to help raise awareness of fatal Genetic Heart Conditions. In March 2016, our daughter – Hollie Cannon, then aged 15 years, collapsed suddenly
CRY’s myheart representative Rebekah Goddard’s story
It’s been 18 years since I was diagnosed with long QT syndrome and had my very first permanent pacemaker implanted; and 25 years since my father found me unresponsive on
The Story of my Heart Disease – by George Ashby
George Ashby has made an inspiring video about his experience after being diagnosed with a heart condition. https://www.youtube.com/watch?v=wIpi1FqFJ7o George’s mother, Amelia Ashby found that George has a heart murmer after
My journey with ALCAPA – My Story by Serena Freeman
My journey with congenital heart disease began on 19th March 2018 when I was 18 years old. I was at work and had just gone on my lunch break when
Idiopathic Polymorphic Ventricular Tachycardia – My Story by Hollie Bell
Since having my little boy 3 years ago this month I haven’t really felt well and have been suffering palpitations, dizzy spells and feeling breathless. My GP just kept putting
I was diagnosed with LQT after 20 years..by Rebecca Scheffe
My name is Becky and I was diagnosed with Long QT Syndrome in 2010 when I was 37 years old. At the age of 17, I had a terrible experience
My journey with ARVC by Gavin Boyce
My journey with ARVC started on January 16th 2012 when I woke up in hospital to see a nurse looking back at me trying to offer me some reassuring words.
Living with a Fontan Circulation – Tricuspid Atresia by Jara Weinkauf
Even though there was no history of heart disease in my family and my parents led a very healthy lifestyle, I was born with tricuspid atresia in 1986 in Berlin/Germany.
Super Ventricular Tachycardia (SVT) by Samantha McLaren
I have been suffering from SVT attacks since March 2010 when I suddenly collapsed at work. I was taken to A&E for tests, my heart rate was very high reaching
Paul Cowling-DCM
Before I share my experiences and try to give some idea of how I try to cope with what has happened, one thing should be made very clear: having a
Zenia Selby- earlier diagnosed with WPW
I was out on a 5k run when suddenly my heart started beating several times faster than it should have been. I stopped, sat down, breathed deeply, but nothing would
Paula Beck
Paula Beck (Simmonds) wrote her story to be included in the myheart booklet which was launched in November, 2013. I was diagnosed with Brugada syndrome on 8th August 2011 at
Alessandro Miccoli
Alessandro Miccoli wrote his story to be included in the myheart booklet which was launched in November, 2013. It wasn’t until the end of 2012 that a journalist first introduced
Emma Jackson
Emma Jackson wrote her story to be included in the myheart booklet which was launched in November, 2013. I never liked sports when I was younger and was never any
Sian Donnelly
Sian Donnelly wrote her story to be included in the myheart booklet which was launched in November, 2013. Whilst on a family holiday in 2004, my brother Adam died suddenly
Chris Currie
Chris Currie wrote his story to be included in the myheart booklet which was launched in November, 2013. I was 24 and having the time of my life travelling around
Lucy Challis
Lucy Challis wrote her story to be included in the myheart booklet which was launched in November, 2013. On Sunday 29th January 2006, my older brother Stuart, age 25, collapsed
Mallory Brand
Mallory Brand wrote her story to be included in the myheart booklet which was launched in November, 2013. I discovered I had Wolff-Parkinson-White (WPW) syndrome by chance. I manage events
James Bailey
James Bailey wrote his story to be included in the myheart booklet which was launched in November, 2013. I was pumped up for the game. The adrenaline was rushing through
Antony Eames
Tony Eames wrote his story to be included in the myheart booklet which was launched in November, 2013. I had my first episode of fainting at 4 years old. From
Louise Dee
Living with long QT syndrome Hi, my name is Louise. It all started in 1990 when I was 8 yrs old. I woke up hearing an alarm clock and realised
Stacy
Living with Wolff Parkinson White syndrome Hi, my name is Stacy and I am 19 years old. I was a very healthy child and was always very active and played
Jonny Goode
Living with long QT syndrome I love Sport! Any kind of sport and ever since I remember I have spent most of my spare time either hitting a ball, pedalling
Living with long QT syndrome – Hayley Brown
Living with long QT syndrome I was 19 years old and had just failed my second driving test when my first and only attack happened. I ran through the garden
Living with hypertrophic cardiomyopathy – Fraser Thomas
Living with hypertrophic cardiomyopathy I am one of the few lucky parents as my son, Fraser, survived a full cardiac arrest while playing football last year. He had no previous
Living with right ventricular outflow tract ventricular tachycardia (RVOT-VT) – Julia Hubbard
Living with right ventricular outflow tract ventricular tachycardia (RVOT-VT) I have represented Great Britain in Bobsleigh since 2006 and In October 2007 I crashed in a race and sustained fractured
